Monday, June 12, 2006
Friday, June 09, 2006
Trisomy 18 syndrome is due to the presence of an extra #18 chromosome, meaning that BABY MOONEY has three chromosomes in the eighteenth position instead of the normal two.
Unlike Down syndrome, Edwards Syndrome is usually fatal, with most of the babies dying before birth and those who do make it to birth typically living only a few days. However, a small number of babies (<10%) live at least one year.
Websites with more info:
Trisomy 18 Foundation
**All this info was taken from other sites and we are praying for anything but "typical".
1.) There's nothing you can say to make it any worse or any better
We know it is difficult for our families and friends to know how to comfort us or what to say to us. Therefore, be relieved, and know that your presence, phone calls, and support are what we need, and just the fact that you show us you love us DOES make it better.
2.) We're praying for a miracle
We are praying (and ask you to join us) for healing. We are praying for life for this baby. We know beyond a shadow of a doubt that our God is able to heal our child. And, in the same breath, we know that He is worthy no matter the outcome.
If you do want to pray with us, here is what we would ask you to pray for:
1. For healing. 2. For life and time with this child. 3. Most importantly, that God would equip us for the days ahead & give us the strength to say, "not our will, but your will be done."
3.) We are excited to have our first baby! We could not express how important it is for you to understand that we are not in despair. Rather, we are excited to have this baby at this time. This is our first child, and we cannot wait. Of course, we would do anything in order for this baby to be healthy, and we have cried enough to last a while; but we feel the Lord is sovereign and, therefore, this is the baby for us. And we anxiously await our gift.
4.) We do not know if it is a boy or girl. Again, Trisomy 18 has not changed our approach to our first child, and we really do not know the sex.
5.) We're not strong. If you happen to think we are handling this well (and there are many moments I would argue that point) and see any strength in us at all, please know it is from our Father and not due to anything having to do with either of us.
6.) What can you do? Pray for all 3 of us.